She is miserable today. She just wants to sleep. We keep waking her up every 10 minutes to take a spoonful of soup and a sip of water. She has literally drank half a glass of water and about 10 spoon fulls of soup… two separate soups … The first one got cold so we tried again… all day .. that’s it… we ordered more food hoping she’ll try.
It’s not enough . They are keeping her another day. Hooking her back up to the IV. She’s so upset . She just wants to go home.
She’s not in the fighting mood today. She doesn’t want to wear a cape today. They gave her zofran. I had to tell her twice to take it. They gave her miralax and told her to drink it in a 30 minute time frame. I had to really get on to her to make her drink it. I hate this. She is sick and miserable and looking at me with these pleading eyes to make it all go away and I’m being firm .. “drink the darn medicine!” Instead of cuddling next to her on the bed saying it’s ok .. you don’t have to ….
Earlier she was in pain , walking seemed to help it. As we walked around the floor , Grace pointed out the signs and decorations on the other patients doors. So I’ve been trying to find some removable window cling inspirational quote or something to decorate her door for the next cycle in 3 weeks.
We brought silk pajamas to help her slide in and out of bed, and a silk pillowcase because she has amazing curls that get frizzy when on a regular pillow case. I did not take into account that they change the sheets everyday. So note to self… pack enough silk pillowcases for the entire stay… and an extra everything incase we have to stay an extra day. Like pajamas . She will have to wear the hospital gown tonight.
Also bring extra warm fuzzy socks… my feet are freezing and normal socks are not cutting it…
For three days the TV has been on… even at night while we were asleep because the remote doesn’t work and we couldn’t figure out how to turn it off. Today Bill was playing with it and was able to use the laptop board to turn it off. Yay…. The problem now is we can’t figure out how to turn it back on. Not even the nurses know how. So Thankful for cellphones and iPads to keep us entertained so we don’t go crazy thinking about the what ifs.
Keep praying for our girl…pray for her to keep the fight up. This is stronger chemo than she’s had before. It’s a hard cycle. I don’t think she wrapped her head around the challenge of the fight this time…. We’ll let her rest today… tomorrow she can put her super hero cape back on. I mean even Batman takes a break from fighting evil.
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