Friday morning Grace woke up with a sore thought. When I peeked at it you could see it was red and the bumps starting to form. Bill was able to take her to the her primary doctor. She tested positive for strep and low grade fever 100.2.. if she has a fever of 100.4 more than two times in a 24 hour period she needs to go to the ER… well that’s what happened… even after a full iv bag of antibiotics was pumped in her she still had a fever…they admitted her because her Neutrophils were 0. To go home three things need to happen.
- no more fever
- blood cultures need to have no growth
- her ANC needs to be 200.
as of today there has been no change in her ANC .. still zero. However she has no fever and no growth in the cultures. They said each kid is different. It could take 2 days or 5 days for her ANC to go back up. This is all new to me.. none of this happened last time. So going in I was thinking she’d get antibiotics and go home the next day… nope … because it was unexpected I didn’t have bags packed. I literally just threw some things together but definitely not enough for 5 days. I also left in a hurry and didn’t grab her “chemo bag” with her activities to keep her busy. We do keep this bag packed and ready. I just didn’t think to grab it.
Thankful I did have a deck of cards and monopoly deal. Once her throat felt better these kept us busy. We also watched a lot of movies because we were quarantined to the room being she had strep.
Another unexpected event…. Her hemoglobin has dropped down to 7.2. If it goes lower than 7 , she will need a blood transfusion. They think tomorrow. When this was mentioned I asked Grace how she feels? Does she feel tired, sluggish , is anything feel off.. she said no. She feels fine. She is amazing.
So today we researched how to increase her hemoglobin. She ate the iron rich foods that are available at the hospital. Hoping it brings it up.
Praying that the morning labs show positive progress.
I will tell you how eye opening it is that my child had a sore throat on Friday and is looking at a possible blood transfusion on Monday. Cancer doesn’t play around.
thank you again for your continued prayers!
